Jan

Cant believe we are 2 weeks into the New Year already!  We had a wonderful Christmas and Lillyrose really enjoyed getting spoilt with all her new toys and all the cuddles she got over the festive season from all her Uncles and Aunties and cousins.  Thankfully as well, we avoided getting all the bad flues that have been going around recently and I hope it stays that way.  Hate the thoughts of Lillyrose picking something up and holding her back from all the progress she has made. 

At the moment my husband and myself are busy looking about for a site to build a new house.  At the moment we live in a two story semi-detached in town but we are hoping to get some land and build a bungalow so that Lillyrose will have a nice big room of her own and a wet room.  We want to make it as disabled person friendly as possible for her.  Hopefully the right site will turn up for us soon so we can get started. 

We are also looking forward to the birth of our new baby this June, even though at times I have to admit that fear sets in and I panic that my next baby will have the syndrome too - even though the doctors said no way!!!  - I am afraid to hope!!

As for Lillyrose I really hope that this year brings her some progress especially with her head control and sitting up unaided.  It would be so good to see her having that independance.  Also we hope that she will be able start on solid food next month and will do well with it.  Again a bit of normality for her and us.  It would be great to be able go to town for a coffee with her and that have to pull out the feeding pump and have everyone staring like we have 40 heads.....its so annoying but I try to remember that people dont mean it.

Sorry now I am rambling on now so will sign off.

Hopefully will have more news on my next post.....