The run up to Christmas

Sorry now but I am so new to all this blogging (if thats even a word!!), I just notice so many parents have pages for their families I said i better do the same so we can get to know all of you WHS families out there, and that maybe ye can help us out some times if we need it!!  Its a good support network to have, as its hard to find people who can understand.

Well i cant believe its Christmas week and we have our little angel here for it.  Its been such a long dramatic year I just cant wait to start 2011 fresh.  Dont get me wrong I love Christmas and cant wait for it, but after all the heartbreak from 2010 I cant wait to ring in the new year. 

So far Lilly-rose has been doing so well, she is now almost 5 months and I cant believe it.  She has only had two spells of hospital so far (and one of those was for elective surgery on her face for her lip repair) which is a far cry from what we were told to expect!  She is doing well with her weight gain and growth also, she is mostly NG tube fed but does take some bottle feeds.  Her doctor is anxious to try her on solids for the New Year so hopefully that will go well.  Her Physio seem happy enough with her progress even though her head control is still very weak, I am hoping and praying that this also improves.  She has been smiling now for a month of more, and has begun making cooing sounds, so all that to me is good progress.  She is such a cutie and full of fun.  We bought her to see santa the other day and she was so tiny on his lap you would just have to laugh.  Dont know what she asked for....but I asked on her behalf for a healthy happy 2011 : )